Sunday, September 4, 2016

Horrible Pain for my boy with Autism

Warning:  Some of you may know what I’m talking about right away, others may not.  If you haven’t experienced the horrible pain some kids with autism may go through, this post may be more than you can handle.  Heck, I can barely handle it myself; but here it goes.

Guess which one is Dante, at one week old.  
Dante has lived with pain for as long as I can remember.  I call it pain but I really don’t know what ‘it’ is.  What I do know is that he cries real tears, he hits or slaps his head, or tries to bang his head against anything hard, he thrashes on the floor or against his bed and it is very hard to control him.  He seems to be in an agony that he only wants to exacerbate with more agony.  I’m sure some of you know exactly what I am talking about.

Friday, August 19, 2016

Sharing and Connecting in order to heal

Hello Everyone! 

It has been quite a while (over two years!) since I last posted and, as you can imagine, the roller-coaster ride that is autism has been very challenging these last couple of years.  But we have been in a good place for a couple of months now and I really want to connect and share some observations once again. 

Before I do that, however, I need to give a shout out to a woman, Karen Elmquist, who, back in October 2015, read one of my many desperate facebook posts about my son’s seizures and reached out to me with advice.  She understood what we were going through because of her own son’s experience.  This short message from her has helped turn Dante’s seizures around and, because of this new-found peace, I am able to post again:


One little post from a stranger, one huge impact to our family.  It is because of the power of sharing that I want to write again about our experiences.  It is so important to stay connected.  Thank you for reading!

Next Up:  Let’s talk about horrible pain for some with autism.